Type 1 diabetes can be an isolating condition. It’s important for you to know that you are not alone. Your health care team (which includes your doctor, a nurse educator, a dietician, and a psychologist) should always be your first stop for specific medical information regarding type 1 diabetes. But there are also lots of other organizations here to support you in your journey.
In-Person Support and Online Communities
- American Diabetes Association. (ADA). The ADA offers the Courage-Wisdom-Hope Kit for those newly diagnosed. The ADA also runs diabetes camps all over the country, which allow children with diabetes to have a traditional summer camp experience and meet other children with type 1. If you are adult with type 1 diabetes, consider volunteering at your local ADA chapter or as a camp counselor.
- Beyond Type 1. A website with loads of advice and blogs about life with type 1 diabetes.
- Children with Diabetes. An online community for kids, families and adults with diabetes. They also hold an annual conference for children with type 1 diabetes and their families, called Friends for Life.
- Diabetes Education and Camping Association (DECA). Over 400 options for youth, young adults, and families impacted by type 1 diabetes. These include week-long sleep away camp, family weekends, and other support activities.
- Glu. An online community for people with type 1 diabetes and people who care about them.
- JDRF. JDRF offers a Bag of Hope for children who are newly diagnosed with type 1 diabetes, and a T1D Care Kit for newly diagnosed adults. You can request to have these sent to you online. Also check out TypeOneNation, a social network for people with type 1 diabetes and one-one-one volunteer and email support to answer questions. In addition, local JDRF chapters can connect you with a mentor who can help.
Family Communication and Emotional Support Strategies
- ADA. – Tips for Improving Family Communication.
- Diabetes Empowerment Foundation. – Tips for caring for a teen with Type 1 Diabetes.
Working with Schools
For College Students
- College Diabetes Network. Provides innovative peer based programs to connect empower students and young professionals to thrive with diabetes.
- Students with Diabetes. Has local chapters and an annual conference for college students with type 1 diabetes to connect and find support.
- Diatribe. Provides free cutting-edge diabetes insights and actionable tips for people with diabetes.
Research & Advocacy
- ADA. Become a diabetes advocate. You will receive a few emails a year asking you to contact your legislators about diabetes related legislation.
- ClinicalTrials.gov. Learn about current clinical trials and consider participating.
- JDRF. Become a diabetes advocate. You will receive a few emails a year asking you to contact your legislators about diabetes related legislation.
- JDRF. Stay updated on the latest research or volunteer for a clinical trial at JDRF Research.
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.
- American Diabetes Association (ADA)
- ADA – Become a diabetes advocate
- ADA – Family Communication
- ADA – Safe at School Campaign
- Beyond Type 1
- Children with Diabetes
- College Diabetes Network
- Diabetes Education and Camping Association (DECA)
- Diabetes Empowerment Foundation
- JDRF – Become a diabetes advocate
- JDRF – Research
- JDRF – School Advisory Toolkit
- Students with Diabetes